Genetics and Law: Guide to Resources
II. Major Internet Portals, Databases & Other Starting Points for Research
The following sources provide extensive access to primary and secondary material and/or provide numerous links to relevant sources.
Bioethics Reporter (1983-)
University Publications of America
QH332 .B36
• Current loose-leaf volumes kept update to date bi-monthly
• A comprehensive collection of resource materials to address
the medical, legal, philosophical, religious, economic and
social aspects of bioethics
Bioethics Web
http://bioethicsweb.ac.uk/browse/mesh/C0017398L0017398.html
• An authoritative source that evaluates English language internet
resources in the area of bioethics & genetics
• Links to and describes genetics databases, web sites and articles
available on the Internet
Biotechnology & Genetics Law (Megalaw.com)
http://www.megalaw.com/top/biotech.php
Links to :
• Biotechnology & Genetics-Related Statutes
• Biotechnology & Genetics-Related Regulations
• Government Biotechnology & Genetics Law Resources
• Biotechnology & Genetics Law Web Sites & Resources
Dolan DNA Learning Center, Cold Spring Harbor Laboratories:
http://www.dnalc.org/
In addition to a wealth of general information about DNA and DNA research,
this site includes extensive lists of links on the following topics:
• Bioinformatics
• Genes and Health
• Genome Research
• Journals and News
Genetics & Law (Marian Gould Gallagher Law Library – University of Washingon Law School)
http://lib.law.washington.edu/ref/genetics.html
• Selected internet resources, including government bodies
• Sources for state research
Genetics Resource Centre (University of Pittsburgh)
http://www.pitt.edu/~edugene/resource/
• Gateway to an exhaustive list of links in genetics (not searchable)
• Organized by topic
Kennedy Institute of Ethics – Georgetown University
The National Information Resource on Ethics & Human Genetics http://www.georgetown.edu/research/nrcbl/bioethics/nirehg/index.htm
• Funded by the National Human Genome Research Institute, National Institutes
of Health
• Bibliographies on Topics in Genetics (see ‘Bibliographies’ above)
• E-Notes
E-notes is a new feature on the National Information Resource on Ethics and Human
Genetics Web site. Each e-note provides a succinct description of ELSI (ethical, legal
and social implications) issues on a specific topic in genetics. Several e-notes are in
development. Eventually each e-note will lead to tips on finding current, relevant citations
in bibliographic databases; the full-text of selected online resources; research
assistance; and other related Web sites. The first two e-notes issued cover eugenics
and genetic testing and screening.
• Genetics links
• Genetics organizations
Databases at this site of particular research value:
ETHX on the Web
http://www.georgetown.edu/research/nrcbl/databases.htm
• Journal articles, book chapters, bills, laws, court decisions, reports,
books, audio-visuals, and news articles relating to bioethics and professional ethics
Genetics and Ethics
http://www.georgetown.edu/research/nrcbl/databases.htm
• Books, journal articles, book chapters, bills, laws, court decisions,
reports, news articles and audiovisuals relating to ethics and public policy issues in
genetics
National Human Genome Research Institute (NIH) : Policy & Ethics
http://www.nhgri.nih.gov/PolicyEthics/
• Policy and legislation database
• Guides, including reports, publications and links on:
• Privacy and discrimination in genetics
• Genetics and the law
• Health Issues in genetics
• Biomedical research issues
• Ethics research
• List of online bioethics resources
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