Genetics and Law: Guide to Resources
IV. Federal & State Law/Government Information
Federal Laws/Regulations
Biotechnology and Genetics Law (MegaLaw.com)
http://www.megalaw.com/top/biotech.php Links to specific:
• Federal statutes
• EPA regulations
• USDA regulations
• USFDA regulations
US Department of Health and Human Services:
Office of the Assistant Secretary for Planning and Evaluation: Privacy Committee – Health
http://aspe.hhs.gov/datacncl/privacy/#health • Links to primary sources
State Laws/Regulations
Policy and Legislation Database
(National Human Genome Research Institute (NIH))
http://www.genome.gov/PolicyEthics/LegDatabase/pubsearch.cfm State Genetics Laws by Topic
(National Conference of State Legislatures)
http://www.ncsl.org/programs/health/genetics/charts.htm
Government Information
President’s Council on Bioethics
http://www.bioethics.gov/ • Council reports available in full-text
• Transcripts of Council meetings ; insights into federal policy
• Links to articles and other publications
US Department of Energy
Biological and Environmental Research Program
http://www.science.doe.gov/feature/BER.htm • Founder of the Human Genome Project
• Texts of papers, current program activity and program reports
• Links to related sources
US Department of Health and Human Services:
Office of the Assistant Secretary for Planning and Evaluation: Privacy Committee – Health
http://aspe.hhs.gov/datacncl/privacy/#health • Committee reports on issues of privacy of genetic information and related topics
• Current status of research projects in privacy of genetic information
• Links to primary sources
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