Genetics and Law: Guide to Resources
V. Additional Web Sites by Topic
Academic Sites & Research Centers
Bioethics: Academic Centers & Educational Sites
National Institutes of Health
http://www.nih.gov/sigs/bioethics/academic.html • Lists and describes bioethics academic centers & research sites
Bioethics Links (University of Pittsburgh Center for Bioethics & Health Law)
http://www.pitt.edu/~bioethic/links.htm • Another excellent list, with descriptions, of bioethics academic programs
and research sites
CDC Genomics and Disease Prevention: academic organizations
http://www.cdc.gov/genomics/links/academic.htm • Includes useful descriptive information about site contents
Health law resources (University of Washington)
http://www.washlaw.edu:80/subject/medicine.html
Genetics/Law & Policy (U.S., Foreign & International)
American Society of Gene Therapy (Policy/Position Statements)
http://www.asgt.org/positionstatements.shtml • The American Society of Gene Therapy informs the media and public about new
developments in gene therapy and gene therapy research through position statements
Australian Law Reform Commission
http://www.alrc.gov.au CAE [Center for Applied Ethics] Electronic Working Papers Series
The W. Maurice Young Centre for Applied Ethics, University of British Columbia, Canada
http://www.ethics.ubc.ca/workingpapers/deg/index.htm • Research papers by Centre faculty, staff and research associates that are
judged by the series editors to be suitable in whole or in part for
submission to a refereed journal, a conference, or for inclusion in an edited book
• References include an abstract (text version), the complete paper (Adobe Acrobat),
and a citation.
Catherine Baker, Your Genes, Your Choices, Exploring Issues Raised by Genetic Research (AAAS & DOE, 1999):
http://ehrweb.aaas.org/ehr/books/index.html Centre for Law & Genetics, human genetics:
http://lawgenecentre.org/search.php?category=Human The Genetics and Public Policy Center
http://www.dnapolicy.org/index.jhtml HUMGEN (University of Montreal Law School)
http://www.humgen.umontreal.ca/en/GenBiblio_q.cfm • Emphasis on ethical, legal and social policy
Human Genetics Alert (organization’s site: verify data)
http://www.hgalert.org/ • An independent public interest watchdog group, based in London, UK
committed to informing people about human genetics issues, and to
putting forward clear policies that serve the public interest
Human Genetics Commission, U.K.
http://www.hgc.gov.uk/ Judicature, Genes & Justice Symposium (1999):
http://www.ornl.gov/sci/techresources/Human_Genome/publicat/judicature/
Bioethics
The American Society for Bioethics and Humanities (ASBH)
http://www.asbh.org/index.htm • “The purpose of ASBH is to promote the exchange of ideas and foster
multidisciplinary, interdisciplinary, and interprofessional scholarship,
research, teaching, policy development, professional development, and
collegiality among people engaged in all of the endeavors related to
clinical and academic bioethics and the health-related humanities.”
• See especially: Task Force Resources/Reports and Resource Links
Bioethics.net
(American Journal of Bioethics, Albany Medical College & Union University)
http://www.bioethics.net/ • Articles from the American Journal of Bioethics
• News features updated weekly
• Internet articles by topic
Bioethics Today, Electronic Bioethics Resource for the U.K
http://www.bioethics-today.org/ UNESCO International Bioethics Committee
http://www.unesco.org/ibc/ • The Bioethics Programme is part of UNESCO’s Division of the Ethics
of Science and Technology in the Social and Human Sciences Sector
• Includes committee documents
• Includes or links to relevant international law instruments
Back to:
Genetics and Law Resources Guide main page